FAMILY ASSOCIATIONISM AND DISABILITIES: APPROACHES AND INTERVENTION STRATEGIES A SCOPING REVIEW

Arianna Taddei

Abstract


This contribution intends to investigate the phenomenon of associationism of families of children with disabilities through a Scoping Review which has set itself, among its main objectives, that of identifying the approaches and support strategies adopted by the families of the associations. The results are in continuity with the first part of the study presented in a previous work by the author (****) which had the purpose of studying the roles, motivations and purposes of associations of families of children with disabilities, offering interesting suggestions and factors for reflection also for this article.The results described below urge special pedagogy to undertake research trajectories that turn the spotlight on the evolving pedagogical processes within families of children with disabilities, with particular attention to the associative dimension. The approaches of empowerment and resilience as well as coping and parent to parent support strategies attribute a strategic role to the family in its plurality of voices, identities, needs and desires which deserve to be adequately investigated.


Keywords


Scoping Review, Family Associations, Children with Disabilities, Approaches, Inclusive Strategies.

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References


Arakelyan, S., Maciver, D., Rush, R, O'hare, A. & Forsyth, C. (2018). Family Factors Associated with Participation of Children with Disabilities: a Systematic Review. In Developmental Medicine & Child Neurology, 61, pp.514–522. DOI: https://doi.org/10.1111/dmcn.14133

Arksey, H. and O’Malley, L. (2005). Scoping Studies: Towards a Methodological Framework. In International Journal of Social Research Methodology: Theory & Practice, 8 (1), pp.19-32. DOI: https://doi.org/10.1080/1364557032000119616

Beach Center (2001). Family Quality of Life Survey. Kansas, University of Kansas-Beach Center of Disability.

Bhopti, A., Brown, T. and Lentin, P. (2016). Family Quality of Life: A Key Outcome in Early Childhood Intervention Services – A Scoping Review. In Journal of Early Intervention, 38 (4), pp.191-211. DOI: https://doi.org/10.1177/1053815116673182

Bingham, B. & Stefhen, W.S. (2010). Provinding effective coping strategies and Supports for Families with Children with Disabilities. In Intervention in School and Clinic, 35 (5), pp.194-196.

Boehm, T.L., Carter, E.W. & Taylor, J.L (2015). Factors associated with family quality of life during the transition to adulthood for youth and young adults with developmental disabilities. In American Journal on Intellectual and Developmental Disabilities, 120, pp.395-411. DOI: 10.1352/1944-7558-120.5.395

Bronfenbrenner, U. (1974). Developmental Research, Public Policy and the Ecology of Childhood. In Child Development, 32, 513-531.

Bronfenbrenner, U. (2005). Making Human Beings Human. Bioecological Perspectives on Human Development. Oaks: Sage.

Caldin, R. & Cinotti, A. (2013). Padri e figli/e con disabilità: vulnerabilità e resilienze. In Studium Educationis, Anno XV (3), pp.93-101.

Carrà, E. (2013). L'Associazionismo familiare come fattore di coesione sociale. In Studi di Sociologia, n.3-4, pp. 245-247.

Colquhoun, H.L., Levac, D.E. and O’Brien K.K. (2014). Time for Clarity in Definition, Methos and Reporting. In Journal of Clinical Epidemiology, 67 (12), pp.1291-1294. DOI: 10.1016/j.jclinepi.2014.03.01

Córdoba, L. (2017). Calidad de vida, un modelo clave en la atención a personas con discapaci- dad intelectual desde la perspectiva ecológica. In Revista Electrónica de Educación Especial y Familia, 8 (2), pp.6-13. DOI: https://doi.org/10.16925/2382-3984.2020.01.01

Crescimbeni, M. and Amatori, G. (2019). Narrazione e associazionismo familiare: il potere trasformativo del raccontare l'esperienza familiare. In Giaconi C., Del Bianco N. e Caldarelli A. (eds). L'Escluso. Storie di resilienza per non vivere felici e scontenti. Milano, FrancoAngeli.

Dettori, G.F. e Tedde, A. (2020). Educare bambini e ragazzi con Disturbo dello Spettro dell’Autismo attraverso la mediazione delle figure parentali: il Parent Management Training a distanza. In Rivista di Educazione Familiare, 2, pp.439-458. DOI: 10.13128/rief-9443.

Ekas, N., Timmons, L., Pruitt, M., Ghilain, C. & Alessandri, M. (2015). The Power of Positivity: Predictors of Relationship Satisfaction for Parents of Children with Autism Spectrum Disorder. In Journal of Autism and Developmental Disorders, January 2015, 45 (7). DOI: 10.1007/s10803-015-2362-4

Fernández, A., Montero, D., Martínez, N., Orcasitas, J. R. y Villaescusa, M. (2015). CVF: marco de referencia, evaluación e intervención. In Siglo Cero, 46(2), 7-29. DOI: http://dx.doi.org/10.14201/scero2015462729

Gardiner, E. & Iarocci, G. (2014). Students with Autism Spectrum Disorder in the University Context: Peer Acceptance Predicts Intention to Voluteer. In Journal of Autism and Developmental Disorders, 44 (5), pp.1008-1017. DOI: 10.1007/s10803-013-1950-4

Ghirotto, L. (2020). La Systematic Review nella ricerca qualitativa. Metodi e strategie. Roma, Carocci Editore.

Giaconi, C. (2015). Qualità della vita e adulti con disabilità. Percorsi di ricerca e prospettive inclusive, Milano, FrancoAngeli.

Giaconi, C., Del Bianco, N., Crescimbeni, M. & Rodriguez, M.B. (2018). Famiglie con figli disabili: il contributo della pedagogia speciale. In Giaconi C., Del Bianco N. (Eds). In Azione. Prove di inclusione. Milano, FrancoAngeli.

Hoffman, L., Marquis, J., Poston, D., Summers, J. A. y Turnbull, A. (2006). Assessing Family Outcomes: Psychometric Evaluation of the Beach Center Family Quality of Life Scale. In Journal of Marriage and Family, 68(4), pp.1069-1083. DOI: https://doi.org/10.1111/j.1741-3737.2006.00314.x

Latefa, D. & Muayyad, A. (2013). Coping Strategies as Mediators and Moderators between Stress and Quality of Life among Parents of Children with Autistic Disorder. In Stress and Health, 31, pp.5-17. DOI: 10.1002/smi.2513

Levac, D., Colquhoun, H. and O’Brien, K.K. (2010). Scoping Studies: Advancing the Methodology in Implementation Sciences, 5 (69). DOI: https://doi.org/10.1186/1748-5908-5-69

McCabe, H. (2008). The Importance of Parent-to-Parent Support among Families of Children with Autism in the People’s Republic of China. In International Journal of Disability, Development and Education, 55 (4), December 2008, pp.303–314. DOI: https://doi.org/10.1080/10349120802489471

Mura, A. (2004). Associazionismo familiare, handicap e didattica. Una ricerca esplorativa. Milano, FrancoAngeli.

Mura, A. (2009). Famiglie e associazionismo: il contributo al processo di integrazione. In Pavone M. (edited). Famiglia e progetto di vita. Crescere un figlio disabile dalla nascita alla vita adulta. Trento, Erickson.

Nocera, S. (2001). Il diritto all’integrazione nella scuola dell’autonomia. Trento, Erickson.

Sardohan Yıldırım, A. E. & Akçamete, A. G. (2019). A Family Centered Training Model Proposal to Meet the Needs of Parents Having Multiple Disabled Child. In International Journal of Early Childhood Special Education, 11(2), pp.168-182. DOI: 10.20489/intjecse.670476.

****

Turnbull, A., Summers, J., Lee, S. H. y Kyzar, K. (2007). Conceptualization and Measurement of Family Outcomes Associated with Families of Individuals with Intellectual Disabilities. In Mental Retardation, 13(4), pp.346-356. DOI: https://doi.org/10.1002/mrdd.20174

Verdugo Alonso, M. Á., Córdoba Andrade, L. y Rodríguez Aguilella, A. (2020). Calidad de vida en familias de personas con discapacidad. In Pensando Psicología, 16 (1), pp.1-23. Doi: https://doi.org/10.16925/2382-3984.2020.01.01

Visentin, S. (2020). Essere padri di figli con disabilità intellettiva: l’autonomia come sfida educativa. In L’integrazione scolastica e sociale, 19 (1), pp.129-146. DOI: 10.14605/ISS1912012

Zuna, N. I., Summers, J. A., Turnbull, A. P., Hu, X. e Xu, S. (2009). Theorizing about Family Quality of Life. In R. Kober (Eds.). Enhancing the Quality of Life of People with Intellectual Disability: From Theory to Practice. Nueva York, Springer.




DOI: https://doi.org/10.32043/gsd.v5i4.462

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